Profiled: Isabella Digianni

profile-isabella-digianniSometimes life grants us the liberties and freedom to live our lifestyles any way we see fit. The freedom of laughter and the freedom to live according to our own free will. Sometimes life grants us the morality of childhood as the choices of right and wrong. And a favorable juncture of circumstance was all just an opportunity to be a child. And then sometimes life denies a child of the simplicity of childhood.

With the heart of an angel, and the mind of a normal five year old Isabella Digianni has been denied the possibility to have the freedom, the laughter and the opportunity which all of us remember our childhoods to be. Our candid memories of the priceless and delicate years that passed us by, full of adventure and allurement created a world of mythical excitement and vivid imagination. Isabella’s opportunity to create the memories of fascinating experiences has been replaced with a devastation of extreme illness. While the ideology of a normal five year old is to play carefree, Isabella’s daily goals relate to medication consumption, moral support and the will to survive.

Listen to the interview with Isabella, her mom Shannon and Danielle Cote from 10-4-2011

[dewplayer:http://www.girardatlarge.com/wp-content/uploads/media/audio/10-4-hour-bella-fund.mp3]

Profiled: Isabella Digianni

profile-isabella-digianni

Sometimes life grants us the liberties and freedom to live our lifestyles any way we see fit. The freedom of laughter and the freedom to live according to our own free will. Sometimes life grants us the morality of childhood as the choices of right and wrong. And a favorable juncture of circumstance was all just an opportunity to be a child. And then sometimes life denies a child of the simplicity of childhood.

With the heart of an angel, and the mind of a normal five year old Isabella Digianni has been denied the possibility to have the freedom, the laughter and the opportunity which all of us remember our childhoods to be. Our candid memories of the priceless and delicate years that passed us by, full of adventure and allurement created a world of mythical excitement and vivid imagination. Isabella’s opportunity to create the memories of fascinating experiences has been replaced with a devastation of extreme illness. While the ideology of a normal five year old is to play carefree, Isabella’s daily goals relate to medication consumption, moral support and the will to survive.

Listen to the interview with Isabella, her mom Shannon and Danielle Cote from 10-4-2011

[dewplayer:http://www.girardatlarge.com/wp-content/uploads/media/audio/10-4-hour-bella-fund.mp3]

On April 1, 2011, Isabella Digianni was diagnosed with childhood leukemia. Isabella’s white blood cells can not perform there normal function of protecting her body of diseases because they are abnormal. While the cancer of the white blood cells are creating chaos within Isabella’s body, she was diagnosed with a second devastating type of cancer, a stage three Wilm’s Tumor. A Wilm’s Tumor is a tumor attached to Isabella’s kidney the size of a small grapefruit. At stage four, the cancer mass begins to spread throughout Isabella’s other organs. Isabella is in need of surgery to remove all or part of her kidney to prevent the tumor from spreading. Conflicting the need of chemotherapy for her leukemia, her body needs her kidneys to accept the mass amounts of medication and chemotherapy for her leukemia. While doctors from Boston’s Childrens Hospital and The Childrens Hospital at Dartmouth race to find the proper solution for the two devastating cancers within Isabella’s body, a heartbreaking third diagnosis is found. Isabella Digianni at the age of five, was diagnosed with leukemia, a Wilms Tumor and Fanconi Anemia. Fanconi Anemia is a rare inherited blood disorder that leads to bone marrow failure. While Isabella’s leukemia is being fought, the doctors meet in teams to find the proper order and the best solution of procedures to save Isabella’s life. This requires a residency at the hospital once a week, sometimes weeks at a time.

The only possibility of Isabella’s survival is her incredibly big heart and her dedicated teams of doctors, nurses and hospital staff. While we all pull together to fight for Isabella’s right to a carefree childhood, the simplest obstacles prevent the opportunity for her to get the treatment she needs to procure a normal healthy life. While close family and friends fund raise and find ways to donate to help Isabella’s mom and dad, finding transportation to Dartmouth and Boston twice a week is challenging. Isabella’s dad continues to provide the only source of income with the heavy thoughts of his daughter on his mind at work everyday. Her dad and family members bring Isabella and her mom to the hospital for blood transfusions, chemotherapy, genetic testing and even high fevers.

As a reach out from the general community, friends and family as part of The Bella Fund we are looking for people that would take interest in The Bella Fund with a possibility to donate to Isabella and her family. Isabella will be fighting for her life for a minimum of two years, and traveling twice a week from Manchester to Dartmouth and Boston. With history in the making, with your help, we fight together, we win together. Bella thanks you for your time and consideration and the chance to be a child again.

Please visit www.thebellafund.webs.com for more information and use the PayPal link at the bottom of the page to contribute to the fund. Even the smallest donations will help.